http://danmalcore.websitetoolbox.com The Hyperacusis Network Message Board 60 Sat, 07 Nov 2009 13:34:03 GMT http://danmalcore.websitetoolbox.com/post?id=3786872 hi again, <br><br>it's me... again...<br><br>i was wondering... this may be more of a poll. i would like to get a flu shot because the idea of being all stuffed up just yuks me out and i don't think my ears would like it either and i don't want to take drugs for it.<br><br>but there is so much negative press about flu shots. what do others do? Last year i found mercury-free shots but this year I can't seem to.<br><br>thanks in advance, <br>patti<br><br> <p>Forum: <a href="http://danmalcore.websitetoolbox.com/?forum=47709">New Messages</a> http://danmalcore.websitetoolbox.com/post?id=3786872 Thur, 05 Nov 2009 00:54:36 GMT pattiluv http://danmalcore.websitetoolbox.com/post?id=3786864 hi all,<br><br>my friend has been trying to get me to get a test for lyme disease. she says that the fact that i have hyperacusis is enough proof to warrant the test.<br><br>she also says the only really good test costs $1000 to catch "late stage" chronic lyme disease.<br><br>i notice no one here ever talks about it... <br><br>is it generally considered a good idea to get tested for it if you have h?<br><br>many thanks, <br>pattiluv<br><br><br> <p>Forum: <a href="http://danmalcore.websitetoolbox.com/?forum=47709">New Messages</a> http://danmalcore.websitetoolbox.com/post?id=3786864 Thur, 05 Nov 2009 00:52:06 GMT pattiluv http://danmalcore.websitetoolbox.com/post?id=3785883 <P>Today,after months of no exercise due to my h/t,I decided to start up again. I ran 2 miles on the treadmill,lifted weights and did some crunches. I drank 2 cups of coffee afterward. I went outside to wax my car. As I waxed the car I heard a bluejay fly overhead.As it flew,it let out an ear piercing cry. It was so loud and excruciating! I cant believe that all of my progress is lost today! I didnt have a problem like this for weeks! Burning ears and loud tinnitus. I ran to get my sound gens on and got some immediate comfort from the burning. I guess I will wear them more often!</P> <p>Forum: <a href="http://danmalcore.websitetoolbox.com/?forum=47709">New Messages</a> http://danmalcore.websitetoolbox.com/post?id=3785883 Wed, 04 Nov 2009 19:09:41 GMT saab1216 http://danmalcore.websitetoolbox.com/post?id=3785239 10 months ago I had acoustic trauma while standing in front of some huge speakers for 20 mins at a concert. I have these symptoms:<br /><br><br /><br>1) tinnitus, mostly in my left ear where I heard a crunching noise before moving away from the speakers<br /><br><br /><br>2) fullness in the ears (mostly in the right side which were generally closer to the speakers)<br /><br><br /><br>3) crackling popping noises, everytime I swallow or introduce tension into my jaw but sometimes when just talking.<br /><br><br /><br>I have had lots of acupuncture which has helped a bit. And cranial work from a chiropractor hoping that the crackling noises are due to TMJ joint disfunction. Both the treatments have slightly reduced the tinnitus and fullness which is cause for hope but no sign of them going. No progress on the ear noiese.<br /><br>Please help, I feel this is taking over and ruining my life...<br /><br><br /><br>Thanks in advance<br /><br>Alex <p>Forum: <a href="http://danmalcore.websitetoolbox.com/?forum=47709">New Messages</a> http://danmalcore.websitetoolbox.com/post?id=3785239 Wed, 04 Nov 2009 15:09:33 GMT AStef http://danmalcore.websitetoolbox.com/post?id=3783873 <P>My problem might be odd but does anyone out there get bothered by sounds from GettoBlasters or Radios.&nbsp; The sound doesn't have to be loud but audible enough to hear the murmur or the garbled sound emanating from a radio a few feet away?&nbsp; It drives me batty I'm so angry at times I want to get up and smash those radios to bits.&nbsp; But the funny thing is if I'm close to it and I can&nbsp;hear the music I'm fine with it.&nbsp; Sounds like rumbling from Boom boxes or harleys do these sounds bother anyone else or am I just a loner in this predicament?</P> <p>Forum: <a href="http://danmalcore.websitetoolbox.com/?forum=47709">New Messages</a> http://danmalcore.websitetoolbox.com/post?id=3783873 Wed, 04 Nov 2009 04:51:01 GMT GaryD http://danmalcore.websitetoolbox.com/post?id=3774878 We are gathering forces to prepare a Virtual Conference (free) for people who suffer from Selective Sound Syndrome and Misophonics, not really for classic hyperacusis or tinnitus.<br><br>We hope to gather in a 'virtual' conference with several presenters and a Q and A time, along with "Chat" rooms for attendees on particular topics, i.e., Relationships and 4S, Family Times, Work and 4S, and so on....<br><br>If anyone is interested, I will post the exact time and date under this heading and how you can participate.&nbsp; Richard McKenna will MC the event and we are trying to find a Virtual Space where about 1000 people can participate!<br><br>We hope to have video Webcam type recordings that can be preserved for future enjoyment or review.&nbsp; It is a complex process and I hope everyone will feel invited to attend and learn and participate.<br><br>Dr. Marsha Johnson<br>Audiologist<br> <p>Forum: <a href="http://danmalcore.websitetoolbox.com/?forum=47709">New Messages</a> http://danmalcore.websitetoolbox.com/post?id=3774878 Sun, 01 Nov 2009 02:13:22 GMT DrJ http://danmalcore.websitetoolbox.com/post?id=3767130 <font class="Apple-style-span" face="Arial"><span class="Apple-style-span" style="font-size: small;">I posted this in another thread and have mentioned this hear a few times. Since my injury which caused my hyperacusis my hearing has changed. It can best be described as a 'distortion' or a rattling in my perception of sound. Since I'm a musician, I figured rather than try to explain it to see if anyone else experiences a similar sensation, I could emulate it with my music studio.</span></font><div><span class="Apple-style-span" style="font-size: small;"><br></span></div><div><span class="Apple-style-span" style="color: rgb(32, 20, 20); font-family: Verdana, Arial, Helvetica, sans-serif; font-size: 11px; "><div><span class="Apple-style-span" style="font-size: small;"><b>*Warning!* turn your volume down. I don't want this to cause anyone any shock or discomfort.</b></span></div><div><span class="Apple-style-span" style="font-size: small;"><br></span></div><div><a href="http://www.jayselway.com/forpeople/hyperacusis/" target="_blank"><span class="Apple-style-span" style="font-size: small;"><a href="http://www.jayselway.com/forpeople/hyperacusis/" target="_blank">http://www.jayselway.com/forpeople/hyperacusis/</a></span></a></div><div><span class="Apple-style-span" style="font-size: small;"><br></span></div><div><span class="Apple-style-span" style="font-size: small;">It starts with how hearing should be normally, then how it sounds for me. As you'll notice, the difference is subtle. You can hear a high pitched whine (approximately at 10-12khz) which represents my tinnitus. You'll also notice a slight delay to the sound along with a bit of a distortion (sort of like a blown speaker).&nbsp;</span></div><div><span class="Apple-style-span" style="font-size: small;"><br></span></div><div><span class="Apple-style-span" style="font-size: small;">Again, please turn your volume down before clicking on that link. It's quite painful for me to listen to, so I don't want anyone else to freak out.</span></div><div><span class="Apple-style-span" style="font-size: small;"><br></span></div><div><span class="Apple-style-span" style="font-size: small;">If any of you have similar symptoms, let me know. It's not 100% accurate to how my hearing is, but I think it's pretty close.</span></div><div><span class="Apple-style-span" style="font-size: small;"><br></span></div><div><span class="Apple-style-span" style="font-size: small;"><br></span></div></span></div> <p>Forum: <a href="http://danmalcore.websitetoolbox.com/?forum=47709">New Messages</a> http://danmalcore.websitetoolbox.com/post?id=3767130 Thur, 29 Oct 2009 01:12:52 GMT jayhybrid http://danmalcore.websitetoolbox.com/post?id=3766803 Hi everyone,<br><br>I am writing because after years of trying to figure out what is going on with&nbsp;my daughter's hearing, &nbsp;I think this might be it.&nbsp; I am a little confused as to whether it is hyperacusis or hyperacute hearing.<br><br>My daugher has down syndrome, thyroid and ADHD.&nbsp; She has had 4 sets of ear tubes and an A/V Canal defect repair to her heart.&nbsp;&nbsp;&nbsp; <br><br>She has always had problems with loud sudden noises.&nbsp; Like sudden clapping, loud church music, people laughing loudly, even talking in a regular voice before bed, etc.&nbsp; I couldn't figure out why she didn't have a problem when she was the one making the loud noises.&nbsp; She puts her hands over her ears, cringes and has a crying fit for some things.&nbsp; She used to be scared of fireworks but now because I always made her go she can handle them as long as she says OHHH and AWWW throughout the whole thing.&nbsp;&nbsp; She is always glad when it's over.&nbsp; I wonder now if it's how she tolerates it by being loud herself.<br><br>She goes to regular classes and gets pulled out for reading and math at her level.&nbsp; She receives speech therapy 2x week.&nbsp; She also receives OT once a week.&nbsp; My CONCERN is that she has started "The Listening Program" for 1/2 hour a day 5 days a week.&nbsp; I'm not sure if that is good or not.&nbsp; I guess it depends on what she has.&nbsp; <br><br>Please provide me with any input I would appreciate it.&nbsp; Also can my regular ENT audiologist do the LDL test?&nbsp; Should I ask for it?&nbsp; Where do I go from here?&nbsp; I am just so happy to have found this information.&nbsp; We moved to SC a few years ago and my New ENT mentioned Hyperacusis today and I need to know what she has.&nbsp; <br><br><br> <p>Forum: <a href="http://danmalcore.websitetoolbox.com/?forum=47709">New Messages</a> http://danmalcore.websitetoolbox.com/post?id=3766803 Wed, 28 Oct 2009 22:39:35 GMT technofamily http://danmalcore.websitetoolbox.com/post?id=3766519 <P>I dont know why this is suddenly an issue with me but now I am sensitive to the letter s and p. This is especially true when my wife talks to me and not with everyone else. Jen,I think has the problem with p as well. It is definately a sensitivity issue as my hyperacusis has been going away but leaving behind the issue of saliva sounds,eating sounds and the pronunciation of P and S. This is not a joke but really part of hyperacusis hearing. This only started to appear two days ago with the letter P.I tried and tried to deny that it was really bothering me but now I see it is progressing.I was thinking that it may be from the power of suggestion from Jen,but I see it may be a real problem.I always have a problem with my wifes high whispery voice and now this? I can now handle keys,dishes,silverware,loud talking and music but not my wifes voice! Is this a psychological issue or remnants of hyperacusis?</P> <p>Forum: <a href="http://danmalcore.websitetoolbox.com/?forum=47709">New Messages</a> http://danmalcore.websitetoolbox.com/post?id=3766519 Wed, 28 Oct 2009 20:40:10 GMT saab1216 http://danmalcore.websitetoolbox.com/post?id=3766459 I recently ordered the Pink Noise CD and uploaded it onto my IPod but now I can't find the instructions. Can anyone help me? I really don't want to order a new CD just for the instructions <img src="http://forums.di.fm/images/smilies/action-smiley-053.gif" align="absmiddle" border="0"><br> <p>Forum: <a href="http://danmalcore.websitetoolbox.com/?forum=47709">New Messages</a> http://danmalcore.websitetoolbox.com/post?id=3766459 Wed, 28 Oct 2009 20:15:56 GMT angiez33 http://danmalcore.websitetoolbox.com/post?id=3766183 Lately, my jaw has been hurting between my left eye and teeth. It used to be that when I would yawn there would be a loud click. A few days ago, this became a painful grinding sound. Now, I can't do a full yawn at all without excruciating pain. Even eating is painful now. However, I can still talk and open my mouth without much fuss. Should I see a doctor about this?<br> <p>Forum: <a href="http://danmalcore.websitetoolbox.com/?forum=47709">New Messages</a> http://danmalcore.websitetoolbox.com/post?id=3766183 Wed, 28 Oct 2009 18:18:37 GMT jayjay http://danmalcore.websitetoolbox.com/post?id=3764626 Hey guys,<div><br></div><div>I've been scouring the net trying to find answers to my ear problem and I came across this site which has been very helpfull. About three months ago I developped this problem with my left ear and i'm really starting to get concerned because it doesn't seem to be getting any better and all the meds given to me by my ent aren't doing anything. Here are the symptoms</div><div><br></div><div><span class="Apple-style-span" style="color: rgb(68, 68, 68); font-family: Tahoma, Verdana, Arial, sans-serif; font-size: 13px; "><div>1) When all is silent, even normal everyday noise, all is well.</div><div><br></div><div>2) As soon as sound gets rather loud, I begin hearing a crackling/broken speaker sound in my left ear.</div><div><br></div><div>3) If I where to scream, as soon as I stop I hear a swoosh/wind sound as an after effect. This happens alot in the morning with dishes clanking around at breakfast.It's weird, but as soon as loud noise stops I immediatly get this swoosh/wind sound for about a second then it's gone (This symptom I find to be the worst).</div><div><br></div><div>4) When i am waking up in bed in the morning I often hear occasionnal clicks/pops deep in my ear.</div><div><br></div><div><br></div><div>This is the best i can describe it. Does anyone relate relate?Am I in the right place here? My ENT thinks it's mild Eustachian tube dysfunction, but i'm skeptical of that. .I sure could use some feedback on this because I feel lost trying to figure it out and doctors have been no help either.I'm a 31 year old male btw.</div><div><br></div><div>Thanx</div><div><br></div></span></div> <p>Forum: <a href="http://danmalcore.websitetoolbox.com/?forum=47709">New Messages</a> http://danmalcore.websitetoolbox.com/post?id=3764626 Wed, 28 Oct 2009 03:11:24 GMT Raddler http://danmalcore.websitetoolbox.com/post?id=3764090 Hello,<br>Im looking for somebody who suffers from fibromyalgia as well as sound intolerance and tinnitus.<br>Please contact me<br><br><br><br> <p>Forum: <a href="http://danmalcore.websitetoolbox.com/?forum=47709">New Messages</a> http://danmalcore.websitetoolbox.com/post?id=3764090 Tue, 27 Oct 2009 23:50:45 GMT iovi http://danmalcore.websitetoolbox.com/post?id=3762168 I've read Dr. Hazell's information about having aversions to certain sounds.&nbsp; I have even emailed him about this, and he was kind enough to respond which I greatly appreciate.&nbsp; He told me not to do the things that cause tension in my head, ear pain, headaches, etc. but to introduce them very slowly (even my seconds at first), so I begin to think of them as unharmful.&nbsp;<br><br>I understand that, but where I'm getting confused is...If sound is what will&nbsp;help my ears to habituate and I'm not suppose to protect my ears from the sound then aren't those symptoms from being around sound normal and part of the process of recovering?&nbsp; If I stop doing some of what I'm doing and limit my exposure even more won't my hyperacusis become worse?<br><br>I keep a t.v. on in the other room all day, I can handle running water (not the shower yet though), but I tried to listen to a sound spa machine this morning and within 3 minutes I had a swarming headache.&nbsp; My left ear began to have a sharp pain in it but no tension or fullness.&nbsp; I stopped listening to it.&nbsp; <br><br>When I listen to music with headphones around my neck I get a little bit of ear pain after 5 minutes.&nbsp; Should I not be doing this?<br><br>Can someone explain what's happening, and how I should proceed?&nbsp; I'm getting very confused.&nbsp; <br><br>I am in the process of getting over-the-ear sound generators.&nbsp; I've ordered Dr. Jastreboff's TRT book and read the&nbsp;excerpt about hyperacusis from his book on a posting here on the network (very informative).&nbsp;&nbsp;Rob explained to me very clearly how the broadband noise used in sound generators is more gentle on the ears than pink noise, so that helped me understand why I am unable at this time to tolerate pink noise. <br><br>I would greatly appreciate any insight&nbsp;all of you wonderful people&nbsp;have to offer.&nbsp; Thank you so much!<br><br> <p>Forum: <a href="http://danmalcore.websitetoolbox.com/?forum=47709">New Messages</a> http://danmalcore.websitetoolbox.com/post?id=3762168 Tue, 27 Oct 2009 14:57:19 GMT kurjen http://danmalcore.websitetoolbox.com/post?id=3757793 Everything seems to be going great with the OTE sound generators I got last Friday. Only side effect I've noticed that I don't like is that immediately after taking them off (after 8 hrs of use) my tinnitus gets pretty bad. It seems to get back to normal after 15 minutes or so, but I was curious if anyone else experienced this.<div><br></div><div>Thanks <img src="/images/boards/smilies/smile.gif" border="0" align="absmiddle"></div> <p>Forum: <a href="http://danmalcore.websitetoolbox.com/?forum=47709">New Messages</a> http://danmalcore.websitetoolbox.com/post?id=3757793 Mon, 26 Oct 2009 01:35:54 GMT jayhybrid